I'm not sure how our parents coped with raising seven quirky children. I picture their worried conversations at bedtime when we were young. My mom asking my dad, "When they're watching TV, is it normal for Judy and Susan to share a cold pillow while holding onto each other's ear lobes and sucking their thumbs at the same time?"(Sometimes we'd have to fetch another pillow, because the first wasn't cold enough.) I picture my dad shrugging. "They're quiet...that's good, right?"
I'm too embarrassed to tell you how long this self soothing behaviour lasted. But we were certainly in school by the time we outgrew it.
I know that some of my odd duck syndrom stems from having a slight case of ADHD. I don't have any of the H, but the rest is fairly accurate. Though never once did my husband tell me that I have a stimming habit. Basically, I sing the same verse of a song over and over again out loud without realizing I'm doing it. This, I've since discovered, can drive my children insane. It's one of the things I'd love to ask my dead spouse about. Did he even notice?
I'm not what you'd consider obsessively clean, but I have a problem with untidy shopping carts. When I'm returning mine, I'm deeply bothered by the ones haphazardly scattered around the parking lot. Anyone watching me would feel certain that I work for the store, as I move the ones that were left in the wrong spot, and make sure everything is lined up carefully. It's a thing. I can't stop myself. And frankly, it seems inconsiderate that everyone else isn't as concerned about it. The world would be a better place if everyone started placing things properly. We could start there and just watch how the political landscape improves. Perhaps Putin would hear the story about Canada's tidy shopping carts and say, 'That's it, I'm done with my attempts at world domination. These people are so organized and careful, they're simply unbeatable!'
On the other hand, I can notice a dropped kleenex on the floor of my living room, and walk by it all day, thinking, hmm. That doesn't belong there. And yet it takes
a while for my brain to get to the next step, which is, why don't I pick it up?
But the most ODS experience I've had so far is a recent diagnosis of a condition called Blepharospasm. I'd never heard of it, but I'd been having trouble with my eyes feeling dry or closing unexpectedly. In September, this condition was confirmed by a neurologist who barked out questions that had me answering like a nervous army recruit.
Then, he walked out from behind his desk and administered the 'Vulcan Pinch.' If you've never watched Star Trek, the move involves pinching someone's shoulder very close to their neck. "Ow!" I said. (He was checking for other dystonia symptoms, but I didn't know that.)
"Sit up straight!" he replied in a commanding voice. I did. In fact, I was already sitting up straight. You know how you want to make a good impression with specialists, as if 'good patient' behaviour means they'll automatically give you the 'all clear?' I was in that headspace.
He gave me a lecture about posture, and without warning, pushed a shot of lidocaine into my upper back as well as 4 units of botox above my eyebrows. Apparently, this 'relaxes' the eye muscles and slows down this spastic habit. As soon as I heard the word spastic, I was thrown back into high school, where 'You Spaz!' was a favourite insult. And for people like me, the shoe already fit. I didn't need that word thrown at me to understand the truth of it.
For instance, while working at the Rex Theatre during high school, I fell down a long staircase, thus earning the nickname, Max. (For non-boomers, he was a sixties TV character who was... let's just say... not very competent. It didn't hurt my feelings.) Besides, we wore dresses and high heels. As ushers! Thankfully, movie theatre ushers of today wear comfortable shoes and loose fitting polyester uniforms.
Anyway, every time I see this neurologist, I come up with new questions. Like, 'can stress cause this condition?' No. It's been sitting in my brain since before I was born. Could stress be a factor? Yes, as it turns out. It is the match that got all this started, and it happened after my sister died. Her death woke it up, though I didn't make the connection between kayaking across a lake with my eyes closed as being weird for the longest time. And I can't drive out of town anymore....I have to fly. Which is such a hassle. For instance, I can no longer buy large containers for my garden at Home Sense, or go to Costco to spend $400 on things I don't need. I miss that. And occasionally when I'm walking around my house, I don't recognize that my eyes are closed and I walk into a wall. But for the most part, it just feels like something I would naturally do.
I still feel like I live a blessed life. Other than this eye thing, I'm healthy. But if you see me walking down the street blinking obsessively, know that it's just my Odd Duck Syndrome showing up. Or my blepharospasm. Whichever, it all feels like business as usual. So, to my ODS people, take heart. At least we have each other .And if any of you in my vicinity have blepharsopasm, please speak up. There's only 100 of us out of every million people who have it, after all. But Odd Ducks are a dime a dozen. Just ask everyone.
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